Neil Bertelsen has spent the past 25 years of bringing the patient voice to health care decision makers and communicating the science of health care to patients in a way that truly informs their own personal health choices. Neil is the past chair of ‘Health Technology Assessment International’s (HTAi) Patient and Citizen Involvement Interest Group’, an international group whose remit is to work closely with HTA organizations and patient organizations to bring patient involvement processes and patient insights and experiences into decision making process. Neil is currently on the steering committee of this group. Neil is also a board member of PFMD (Patient Focused Medicines Development), an international consortium of stakeholders working towards more integrated inclusion of the patient voice across the medicine lifecycle.
Neil works directly with the patient advocacy community, the industry, and authorities such as HTA agencies to facilitate collaborations and co-creation of approaches to improve patient involvement in healthcare decisions. Neil began his career as a scientist and science journalist before becoming a patient advocate in the 1990s where frustration over the lack of patient involvement led him to collaborate closely with stakeholders to work towards meaningful change.
We are proud to announce that EPF Congress 2021 is Patients Included™. This means that EPF is committed to incorporating the experience of patients as experts in living with their condition while ensuring they were neither excluded nor exploited.More information