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The congress'

Programme

View "Hackathon – side event" details

Hackathon – side event

How to enable patient involvement while managing diverge interests and relationships with stakeholders?

Time
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Type
Hackathon
View "Grand Opening of the Congress" details

Grand Opening of the Congress

Welcoming address
Marco Greco, EPF President
Welcome from the European Commission
High-level European Commission representative
Keynote: Why patient involvement? Presenting the evidence

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Type
Plenary
View "Why patient involvement?" details

Why patient involvement?

Keynote talk by an inspirational patient leader (TBC)
Followed by panel discussion: “Different perspectives – one vision”
Hans Kluge, WHO
• JC Tellier, President, EFPIA
• Member of European Parliament
• Patient organisation representative
• Medical professional
• Academic research perspective

Interactive discussion with the audience

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Type
Plenary

Welcome reception

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View "Ensuring equity, inclusivity and diversity of the patients’ voice" details

Ensuring equity, inclusivity and diversity of the patients’ voice

Keynote speech (Prof Jan de Maeseneer)
The speech will be followed by panel discussion to bring in different perspectives, including an NGO working with under-represented groups, a patient organisation (and other relevant).
Participants to be confirmed
Introduction to the parallel working sessions
Congress moderator

Time
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Type
Plenary
View "Best value (for money) in healthcare with patient involvement" details

Best value (for money) in healthcare with patient involvement

Patient involvement is needed to pinpoint the “added therapeutic value” of new technologies and treatments. In this session, we look at experiences from health technology assessment, and other, fields to show the potential of patient involvement in contributing to accurate assessment of value, including value for money, for healthcare interventions. This can support health systems’ sustainability and help reduce wasteful spending. Gaps and divergences in current practice will be explored.

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Type
Parallel session
View "How should healthcare systems involve patients in evaluating their performance?" details

How should healthcare systems involve patients in evaluating their performance?

Health systems’ performance can be assessed by evaluating to what extent they deliver the outcomes and experiences that matter most to patients. This session takes a health systems perspective based on EPF’s work with patients on defining “quality” healthcare, and links to current initiatives on developing patient-centred healthcare quality indicators together with patients.

Time
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Type
Parallel session
View "Patients as partners in research: making co-production “the new normal“" details

Patients as partners in research: making co-production “the new normal“

Patients are increasingly becoming not only research subjects but also co-researchers, and even drivers of research. Research with patients, driven by patients’ real-life unmet needs and priorities, can deliver high-value, sustainable solutions. This session will explore the opportunities of doing research “with” as well as “for” patients, looking at innovative examples from therapeutic research and development, but also at a wider context of health and the setting of research priorities together with patients. The session is developed in collaboration with BMJ.

Time
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Type
Parallel session
View "Designing better healthcare services with patients" details

Designing better healthcare services with patients

This session will look at inspiring and educational case studies, exploring the process, principles, benefits and pitfalls of co-designing a healthcare service local with those who use it. You will have an opportunity to learn from the perspective of the patients and healthcare users, as well as professionals and healthcare managers.

Time
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Type
Parallel session
View "How to ensure digital health brings real-life benefits for patients?" details

How to ensure digital health brings real-life benefits for patients?

This session will explore how patient involvement can be embedded in digital health as a driver for change, towards harnessing digital technologies for the benefit of patients and society. Digitalisation in healthcare has potential to transform care into a much more participatory process. Tools should start from the needs of healthcare users and be developed with the users, to ensure technology actually facilitates participatory, person-centred healthcare and leads to better outcomes for patients, and better value for society.

Time
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Type
Parallel session
View "Patient safety – how can patients and families help improve it?" details

Patient safety – how can patients and families help improve it?

Patients and patient organisations play a key role in advocating for safer care, which should be promoted through empowerment and participation at all levels. Research suggests that “lay expertise” could be the backbone of patient safety, including in acute illness, but there are barriers – such as patients’ concerns not being taken seriously, persistent hierarchical culture, and the disempowering nature of many healthcare settings. This session will build on previous work done by EPF to identify ways forward towards achieving a patient safety culture where patients’ experiences are valued and their participation welcomed.

Time
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Type
Parallel session
View "Culture change and leadership" details

Culture change and leadership

Brief glimpse of main messages from the parallel sessions
Congress rapporteur
Keynote speech
Marc Boutin, National Health Council (US)

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Type
Plenary

Congress Gala dinner

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View "“Patients as teachers” – a deep dive into professional education" details

“Patients as teachers” – a deep dive into professional education

How can and should patients’ involvement shape the education and the continuous professional development of our future healthcare professionals? What can patient involvement bring to the education of other professionals, e.g. health managers, researchers, industry and regulators?
Case studies of innovative practice followed by discussion with panel:
Patient organisation perspective
• Academic/educator perspective
• Young HCP/ student perspective
• Other tbc

Time
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Type
Plenary
View "Closing plenary session" details

Closing plenary session

Brief overview of main messages of from the three days
Congress moderator
Keynote address: “Why health systems must start delivering for patients”
Call for affirmation of commitment from participants to move forward on patient involvement in their own environments
Patient organisation representative
Closing of the Congress
Marco Greco, EPF President

Time
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Type
Plenary

Lunch and departures

Patients included

Go to patientsincluded.org

We’re proud that EPF Congress 2019 is Patients Included. This means that we are committed to incorporating the experience of patients as experts in living with their condition while ensuring they are neither excluded nor exploited.

More information