Borislava Ananieva
Capacity Building Officer & Patient Advocate, European Patients' Forum
The congress' contributors
The congress'
Contributors
Amanda Bok is Chief Partnership Officer with the global non-profit organization, The Synergist, whose mission is to address complex societal challenges through multi-stakeholder collaborative programmes. At The Synergist she is also the spokesperson, member of the senior leadership team, lead incubator of the ‘Global Patient Movement Catalyst’ initiative, and member of the IHI REaDI core leadership team, whose mission is to increase DEI in clinical trials.
Amanda was formerly a recognised patient advocate in the field of hemophilia and rare bleeding disorders (including 11 years as CEO of the European Haemophilia Consortium). She is a former member of the European Commission Expert Group on Rare Diseases, the European Patients’ Forum (EPF) Ethics Committee, the European Commission’s co-funded project EUHANET, and a EUPATI Fellow (cohort 1).
Prior to joining patient advocacy, Amanda worked in international humanitarian aid, European affairs and journalism. She holds a MSc from the LSE in the UK (2001) and has co-authored several academic papers. She is currently an ambassador of the European Intuitive Trainers Network (EUNITA), whose mission is to better serve the needs of disadvantaged adults.
Capacity Building Officer & Patient Advocate, European Patients' Forum
President, European Federation of Neurological Associations (EFNA)
President, Standing Committee of European Doctors (CPME)
Secretary General, European Alcohol Policy Alliance
President & CEO, The Ehlers-Danlos Society
Director of Preference Research and Global Lead of the Patient-Centered Outcomes, OPEN Health
Senior Manager IVD, MedTech Europe
Executive Director, European Regional and Local Health Authorities (EUREGHA)
Researcher & Populariser, Vaccination et Lien Social (VLS)
Senior Research Officer, Swedish Research Council
Chair, Council of Europe Steering Committee for Human Rights in the fields of Biomedicine and Health (CDBIO)
Executive Director, EUPATI
Movement Health, Executive Director
Deputy Administrator General, National Institute for Health and Disability Insurance (NIHDI)
President, European Patients' Forum
Director for Executive Education in Government, Health and Non Profit Division, SDA Bocconi
Policy Officer, DG SANTE, European Commission
President, European Liver Patient Association (ELPA)
Head of Government Affairs, EMEA MedTech, Johnson & Johnson
Professor, Sorbonne Université
Regional Director, WHO/Europe
Director for Digital, EU4Health and Health systems modernisation, DG SANTE, European Commission
IMMUcan scientific lead
Senior Economist, Organisation for Economic Co-operation and Development (OECD)
Executive Director, Biomed Alliance
SVP International, Butterfly Network Inc
Director General, AESGP
Public Affairs Director, OM Pharma
Chief Medical Officer, European Medicines Agency
Prof Dr, Erasmus University Rotterdam
Head of Unit, Policy and Coordination, HERA, European Commission
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CEO, Millwater Partners
Chief Partnership Officer, The Synergist
Policy Officer, European Patients' Forum
Policy Officer, European Patients' Forum
Head of Policy, European Patients' Forum
Interim Executive Director, European Patients' Forum
More moderators Announced soon
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