Borislava Ananieva
Capacity Building Officer & Patient Advocate, European Patients' Forum (EPF)
The congress' contributors
The congress'
Contributors
Carin A. Uyl-de Groot (1966) is Professor of Health Technology Assessment at Erasmus University Rotterdam and director of the Institute for Medical Technology Assessment (iMTA b.v.). Since 2014, she has been a member of the Dutch Committee on Expensive Cancer Drugs (CieBOM) and, since 2015, of the Dutch Health Council.
Her research focuses on cost-effectiveness and outcomes studies, with patient perspectives consistently integrated as a crucial element. She is principal investigator for disease registries and international projects, including ASCERTAIN under Horizon Europe and NIH-supported initiatives, ensuring that patient-reported outcomes are part of the evidence base guiding healthcare decisions.
Uyl-de Groot supervises numerous PhD students and contributes as editor and reviewer to several leading journals. Her work has been published in Lancet Oncology, Nature Reviews Clinical Oncology, Journal of Clinical Oncology, JAMA, BMJ, and Blood, and presented at major international conferences. Her influential papers, including a novel drug pricing model in Nature Reviews and an analysis of disparities in access to cancer drugs in Cancers, have received wide recognition. Across all projects, she emphasizes that meaningful evaluation of healthcare innovations requires not only clinical and economic evidence but also the inclusion of patient voices.
Capacity Building Officer & Patient Advocate, European Patients' Forum (EPF)
Strategic Partnerships Senior Manager, European Patients' Forum (EPF)
Climate Projects Officer, Health Care Without Harm Europe (HCWH)
President, European Federation of Neurological Associations (EFNA)
President, Standing Committee of European Doctors (CPME)
Secretary General, The European Alcohol Policy Alliance (Eurocare)
Executive Director, Innovative Health Initiative Joint Undertaking
President & CEO, The Ehlers-Danlos Society
Director of Preference Research and Global Lead of the Patient-Centered Outcomes, OPEN Health
MD, Board & Youth Group Member, European Patients' Forum (EPF)
Senior Manager IVD, MedTech Europe
Executive Director, European Regional and Local Health Authorities (EUREGHA)
Director of Operations, Cyprus Federation of Patients’ Associations (CyFPA) and Board Treasurer, European Patients' Forum (EPF)
Board Member, European Patients' Forum (EPF) and Secretary General, Greek Patients' Organisation
Researcher & Populariser, Vaccination et Lien Social (VLS)
Senior Research Officer, Swedish Research Council
Chair, Council of Europe Steering Committee for Human Rights in the fields of Biomedicine and Health (CDBIO)
Director Government Affairs & Policy Medtech EMEA, Johnson & Johnson
Executive Director, European Patients' Academy on Therapeutic Innovation (EUPATI)
Deputy Director-General, Federal Ministry of Labour, Social Affairs, Health, Care and Consumer Protection, Austria
Deputy Administrator General, National Institute for Health and Disability Insurance (NIHDI)
President, European Patients' Forum (EPF)
Board Chair, Czech National Association of Patient Organizations (NAPO) & Board Member, European Patients' Forum (EPF)
Director for Executive Education in Government, Health and Non Profit Division, SDA Bocconi
Implementation Scientist & Qualitative Researcher, University of Antwerp
Policy Officer, DG SANTE, European Commission
Youth Group Member, European Patients' Forum (EPF)
President, European Liver Patient Association (ELPA)
Professor, Sorbonne University
Regional Adviser Control of Antimicrobial Resistance, World Health Organisation/Europe (WHO/Europe)
Director HTA, National Agency for Regional Healthcare Services (AGENAS) and Co-Chair, HTA Member State Coordination Group (HTACG)
Youth Group Member, European Patients' Forum (EPF)
Director, Digital, EU4Health and Health systems modernisation, DG SANTE, European Commission
Scientific Lead, Gustave Roussy
Vice President and Head of International Market Access, MSD International Business GmbH
CEO, Rigshospitalet
Director, European Federation of Allergy and Airways Diseases Patients' Associations (EFA)
Senior Advisor, Representation Office to the European Union, World Health Organization (WHO)
Senior Economist, Organisation for Economic Co-operation and Development (OECD)
Head of Global Patient Engagement, Boehringer Ingelheim
European Affairs Advisor, France Assos Santé
Senior Expert, DG HERA, European Commission
Executive Director, Biomed Alliance in Europe
SVP International, Butterfly Network Inc
Director General, Association of the European Self-Care Industry (AESGP)
Vice President Corporate Affairs, Shionogi Europe
Public Affairs Director, OM Pharma
Chief Medical Officer, European Medicines Agency
Prof Dr, Erasmus University Rotterdam
Olivér Várhelyi, Commissioner for Health and Animal Welfare, European Commission
CEO, Millwater Partners
Chief Partnership Officer, The Synergist
Regional Head of Innovation, NHS Greater Glasgow and Clyde (NHSGGC)
Policy Officer, European Patients' Forum (EPF)
PhD, MBA. Secretary of the Board at Health Technology Assessment international (HTAi).
Policy Officer, European Patients' Forum (EPF)
CEO, European Multiple Sclerosis Platform (EMSP) and Board Vice President, European Patients' Forum (EPF)
Head of Policy, European Patients' Forum (EPF)
Interim Executive Director, European Patients' Forum (EPF)
