Borislava Ananieva
Capacity Building Officer & Patient Advocate, European Patients' Forum (EPF)
The congress' contributors
The congress'
Contributors
Astri Arnesen comes from a family affected by Huntingtons Disease (HD). Her mother developed the disease throughout her adolescence and her disease had huge impact on the entire family. Her brother passed away with HD 10 years ago and her sister died last year after suffering from various and steadily growing symptoms for more than 20 years. She has been engaged as a patient advocate and within the Huntington community for over 40 years. She joined the board of the European Huntington Association (EHA) and since 2016 she has been the president and CEO. This position enables her to work full time for the community. She is also very much involved in advocacy and the neurology patient community through her position in the board of the European Federation of Neurological Associations (EFNA) since 2019 and has served as President since 2023. She has also been a patient representative in the European Reference Network for Rare Neurological Diseases (ERN-RND) since 2017.
She is educated as a teacher for people with learning difficulties and disabilities. She has an additional university degrees in developmental psychology, communication, social skills, management and innovative processes.
She lives in Kristiansand, a town in the southern part of Norway together with her husband.
Capacity Building Officer & Patient Advocate, European Patients' Forum (EPF)
President, European Federation of Neurological Associations (EFNA)
President, Standing Committee of European Doctors (CPME)
Secretary General, European Alcohol Policy Alliance
President & CEO, The Ehlers-Danlos Society
Director of Preference Research and Global Lead of the Patient-Centered Outcomes, OPEN Health
MD, Board Member, European Patients' Forum (EPF)
Senior Manager IVD, MedTech Europe
Executive Director, European Regional and Local Health Authorities (EUREGHA)
Researcher & Populariser, Vaccination et Lien Social (VLS)
Senior Research Officer, Swedish Research Council
Chair, Council of Europe Steering Committee for Human Rights in the fields of Biomedicine and Health (CDBIO)
Executive Director, EUPATI
Movement Health, Executive Director
Deputy Administrator General, National Institute for Health and Disability Insurance (NIHDI)
President, European Patients' Forum (EPF)
Director for Executive Education in Government, Health and Non Profit Division, SDA Bocconi
Implementation Scientist & Qualitative Researcher, University of Antwerp
Policy Officer, DG SANTE, European Commission
President, European Liver Patient Association (ELPA)
Head of Government Affairs, EMEA MedTech, Johnson & Johnson
Professor, Sorbonne Université
Regional Director, WHO/Europe
Youth Group Member, European Patients' Forum (EPF)
Director for Digital, EU4Health and Health systems modernisation, DG SANTE, European Commission
IMMUcan scientific lead
Senior Economist, Organisation for Economic Co-operation and Development (OECD)
Executive Director, Biomed Alliance
SVP International, Butterfly Network Inc
Director General, AESGP
Vice President Corporate Affairs, Shionogi Europe
Public Affairs Director, OM Pharma
Chief Medical Officer, European Medicines Agency
Prof Dr, Erasmus University Rotterdam
Head of Unit, Policy and Coordination, HERA, European Commission
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CEO, Millwater Partners
Chief Partnership Officer, The Synergist
Policy Officer, European Patients' Forum (EPF)
Policy Officer, European Patients' Forum (EPF)
Head of Policy, European Patients' Forum (EPF)
Interim Executive Director, European Patients' Forum (EPF)
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