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The congress' contributors

The congress' Contributors

Professor Lara Bloom

Lara Bloom is the President and CEO of The Ehlers-Danlos Society and responsible for globally raising awareness of rare, chronic, and invisible diseases, specializing in the Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and related conditions. Lara leads coordinated medical collaboration, raising funds for research and focuses on global progression, education and awareness.

Her passion is pushing boundaries and fighting for progression in Patient Engagement and Global Collaboration, and she was officially appointed an Academic Affiliate Professor of Practice in Patient Engagement and Global Collaboration at Penn State College of Medicine, USA, in March 2020, which commemorated ten years in the field of patient engagement and advocacy leadership. She is a published author in various renowned journals and speaks worldwide at conferences, policy meetings, corporate and fundraising events and academic lectures as an expert keynote speaker.

Speaking in:
Plenary 2 - Human-centred innovation: rethinking care in the age of digital health and AI.

Speakers

Learn more about Robert Hejzák

Robert Hejzák

Board Chair, Czech National Association of Patient Organizations (NAPO) & Board Member, European Patients' Forum (EPF)

Robert Hejzák
Learn more about Marco Marchetti

Marco Marchetti

Director HTA, National Agency for Regional Healthcare Services (AGENAS) and Co-Chair, HTA Member State Coordination Group (HTACG)

Marco Marchetti

More speakers Announced soon

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Moderators

More moderators Announced soon

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