Borislava Ananieva
Capacity Building Officer & Patient Advocate, European Patients' Forum (EPF)
The congress' contributors
The congress'
Contributors
Lara Bloom is the President and CEO of The Ehlers-Danlos Society and responsible for globally raising awareness of rare, chronic, and invisible diseases, specializing in the Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and related conditions. Lara leads coordinated medical collaboration, raising funds for research and focuses on global progression, education and awareness.
Her passion is pushing boundaries and fighting for progression in Patient Engagement and Global Collaboration, and she was officially appointed an Academic Affiliate Professor of Practice in Patient Engagement and Global Collaboration at Penn State College of Medicine, USA, in March 2020, which commemorated ten years in the field of patient engagement and advocacy leadership. She is a published author in various renowned journals and speaks worldwide at conferences, policy meetings, corporate and fundraising events and academic lectures as an expert keynote speaker.
Capacity Building Officer & Patient Advocate, European Patients' Forum (EPF)
President, European Federation of Neurological Associations (EFNA)
President, Standing Committee of European Doctors (CPME)
Secretary General, European Alcohol Policy Alliance
President & CEO, The Ehlers-Danlos Society
Director of Preference Research and Global Lead of the Patient-Centered Outcomes, OPEN Health
MD, Board Member, European Patients' Forum (EPF)
Senior Manager IVD, MedTech Europe
Executive Director, European Regional and Local Health Authorities (EUREGHA)
Researcher & Populariser, Vaccination et Lien Social (VLS)
Senior Research Officer, Swedish Research Council
Chair, Council of Europe Steering Committee for Human Rights in the fields of Biomedicine and Health (CDBIO)
Executive Director, EUPATI
Movement Health, Executive Director
Deputy Administrator General, National Institute for Health and Disability Insurance (NIHDI)
President, European Patients' Forum (EPF)
Director for Executive Education in Government, Health and Non Profit Division, SDA Bocconi
Implementation Scientist & Qualitative Researcher, University of Antwerp
Policy Officer, DG SANTE, European Commission
President, European Liver Patient Association (ELPA)
Head of Government Affairs, EMEA MedTech, Johnson & Johnson
Professor, Sorbonne Université
Regional Director, WHO/Europe
Youth Group Member, European Patients' Forum (EPF)
Director for Digital, EU4Health and Health systems modernisation, DG SANTE, European Commission
IMMUcan scientific lead
Senior Economist, Organisation for Economic Co-operation and Development (OECD)
Executive Director, Biomed Alliance
SVP International, Butterfly Network Inc
Director General, AESGP
Vice President Corporate Affairs, Shionogi Europe
Public Affairs Director, OM Pharma
Chief Medical Officer, European Medicines Agency
Prof Dr, Erasmus University Rotterdam
Head of Unit, Policy and Coordination, HERA, European Commission
More speakers Announced soon
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CEO, Millwater Partners
Chief Partnership Officer, The Synergist
Policy Officer, European Patients' Forum (EPF)
Policy Officer, European Patients' Forum (EPF)
Head of Policy, European Patients' Forum (EPF)
Interim Executive Director, European Patients' Forum (EPF)
More moderators Announced soon
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