Borislava Ananieva
Capacity Building Officer & Patient Advocate
The congress' contributors
The congress'
Contributors
Lara Bloom is the President and CEO of The Ehlers-Danlos Society and responsible for globally raising awareness of rare, chronic, and invisible diseases, specializing in the Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and related conditions. Lara leads coordinated medical collaboration, raising funds for research and focuses on global progression, education and awareness.
Her passion is pushing boundaries and fighting for progression in Patient Engagement and Global Collaboration, and she was officially appointed an Academic Affiliate Professor of Practice in Patient Engagement and Global Collaboration at Penn State College of Medicine, USA, in March 2020, which commemorated ten years in the field of patient engagement and advocacy leadership. She is a published author in various renowned journals and speaks worldwide at conferences, policy meetings, corporate and fundraising events and academic lectures as an expert keynote speaker.
Capacity Building Officer & Patient Advocate
President, European Federation of Neurological Associations (EFNA)
Standing Committee of European Doctors (CPME) President
Secretary General of the European Alcohol Policy Alliance
The Ehlers-Danlos Society
Director of Preference Research and Global Lead of the Patient-Centered Outcomes, OPEN Health
Senior Manager IVD, MedTech Europe
Executive Director, European Regional and Local Health Authorities (EUREGHA)
Researcher & Populariser, Vaccination et Lien Social (VLS)
Senior Research Officer, Swedish Research Council
Chair of the Council of Europe Steering Committee for Human Rights in the fields of Biomedicine and Health (CDBIO)
EUPATI Executive Director
Executive Director Movement Health
Deputy administrator general by National Institute for Health and Disability Insurance (NIHDI)
EPF President
Director for Executive Education in Government, Health and Non Profit Division, SDA Bocconi
Policy Officer, European Commission - DG SANTE
President of the European Liver Patient Association (ELPA)
Head of Government Affairs, EMEA MedTech, Johnson & Johnson
Sorbonne Université
Regional Director, WHO/Europe
Director for Digital, EU4Health and Health systems modernisation at European Commission DG SANTE
Gustave Roussy
Executive Director at Biomed Alliance
SVP - International, Butterfly Network Inc
Director General, AESGP
Public Affairs Director, OM Pharma
Chief Medical Officer at the European Medicines Agency
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CEO Millwater Partners
EPF Policy Officer
EPF Policy Officer
Head of Policy, European Patients' Forum
EPF Interim Executive Director
