Cees Smit (1951) studied business economics at the Free University in Amsterdam. He lives with severe haemophilia A and worked from 1987 till 1998 as co-ordinator of the Netherlands Haemophilia Society (NVHP). From 1998 till 2002, he worked in the mental health area. From 1978 till now, he has been member of the research project ‘Haemophilia in The Netherlands’ at the Leiden University Medical Centre (LUMC).
In January, 2003 he received an honorary doctorate from the college of deans of the University of Amsterdam in recognition for his work on patient participation, haemophilia and medical biotechnology.
At ZonMw (The Netherlands Organisation for Health Research and Development) he is a member of the Commission for Translational Gene Therapy and Stem Cell Therapy) and he is chair of the Policy Board of the Biobank of Radboud UMCN.
In recent years, he wrote two books on the position of the patient movement in the total health care system in The Netherlands, jointly with Annemarie de Knecht – van Eekelen. One of the issues discussed in these books is the increasing cooperation between patients, researchers and industry in the drug development process (Patient 3.0). Therefore, they wrote several books on ageing with chronic diseases, like haemophilia and hiv.
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We are proud to announce that EPF Congress 2019 is Patients Included™. This means that EPF is committed to incorporating the experience of patients as experts in living with their condition while ensuring they were neither excluded nor exploited.More information