Papatya has worked in academia for nearly 20 years while at the same time devoting her time and focus on disability groups and activism. As a person with spina bifida, she is involved in Turkish Spina Bifida Association (Turkey), Shine Surrey Charity for Spina Bifida and Hydrocephalus (the UK), and she sits on the board of directors of IF (International Federation for Spina Bifida and Hydrocephalus). Her time within academia has taught her how to conduct research and evaluate data. Her work with various disability groups has made her appreciative of the value of working with a hands-on approach, in touch with “real” people.
We are proud to announce that EPF Congress 2021 is Patients Included™. This means that EPF is committed to incorporating the experience of patients as experts in living with their condition while ensuring they were neither excluded nor exploited.More information