Tamara Hussong Milagre is the founder and president of the patient association EVITA (=AVOID), supporting families affected by Hereditary Cancer Syndromes since 2011. Since 2017, she is also a European Patient Advocate Group representative at European Reference Network GENTURIS (Genetic Tumor Risk Syndromes), compromised in the thematic group about Hereditary Breast and Ovarian Cancer HBOC and in the taskforce for Education, Training and Development.
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We are proud to announce that EPF Congress 2019 is Patients Included™. This means that EPF is committed to incorporating the experience of patients as experts in living with their condition while ensuring they were neither excluded nor exploited.More information